Everything you see around yourself comes in multiple variations in some way or another. But what we as humans generally ignore is the fact that every variation is unique and shouldn’t be compared. This is the general idea that our brain also follows in the process of variation. According to neurologists, not all brain parts are unique for every individual. Though we all have an idea about this theoretically, we tend to forget about this when it comes to our day-to-day life. This is where Geniuslane steps into the picture.
provides Early intervention to children and families with Neurodisability.
CDC solution ltd is the parent company of Geniuslane Child development center. CDC solution ltd provides digitized, and easy-to-understand information for Parents, School Counselors, Teachers, Psychologists, and Paediatrician. To help children reach their potential. As per All India Institute of Medical Sciences New Delhi research, almost 12.5% of all school-going children can have underlying visible or invisible neuro disabilities. Parents of children with neuro disabilities have lots of anxiety that needs detailed, professional answers. Failure to seek out an honest source of consistent information results in increased stress levels for parents/caregivers, which encompasses a negative, outcome for his or her children.
Geniuslane is a platform that provides Early intervention to children and families with Neurodisability. But before we get to know what and how they do it we should understand the basic technicalities in the field of neurology.
A branch of medicine that deals with disorders of the nervous system are called Neurology. It deals with the diagnosis and treatment of all categories of conditions and diseases involving the central and peripheral nervous systems, including their coverings, blood vessels, and all effector tissues such as muscle. Neurological practice is highly dependent on the field of neuroscience, which is the scientific study of the nervous system.
Early Childhood Intervention has been described as “a term used to describe the services and foundations available to children and young children with delayed development and disability, at risk of adverse outcomes and their families”.
Early intervention does not mean curing autism or any other Neurodisability but to address secondary and associated problems to improve the quality of life and integrate into mainstream life as much as possible.
The main purpose of the early intervention is to assist in acquiring and integrating the necessary skills for development in a viable manner and to achieve independent functioning in all areas. The period from birth to six years is considered to be the most important for brain development, and interventions during this time will help children achieve their learning and development goals.
The specific benefits of EI include improvements in outcomes such as physical, mental, behavioral, social, and emotional development, parental efficiency, mental health, and understanding of their child. Other reported benefits include increased speaking and non-speaking skills of children with ASD, as well as improved performance of parents and caregivers and an understanding of their child’s needs.
Geniuslane was born with the idea to support every child from 3 months of age to 8 years who face challenges in their day-to-day life due to neurological problems. Geniuslane was first started in Lucknow in the year 2014 as a pilot project to understand the barriers to early intervention and to develop digital solutions which can be replicated in every Indian city so children and families can get help near their homes. Geniuslane firmly believes in and practices the play-to-learn methodology. They disregard therapies for children and in turn, they focus on play to learn methods that act more natural and are beneficial for children.
Why is it so important?
Although these conditions are relatively common, at present there is very little input from experts and specialists in neuro disability in parents and schools. This forum aims to build a common platform where Parents, Schools, and paediatricians can share and experience information while providing individualized treatment foundation. In an audit and need analysis among doctors, they found that they are struggling to find online resources that provide the tools they need to provide full support. They all agreed that a digital platform was required that integrated and distributed information between parents, schools, and doctors.
Making the correct diagnosis as early as possible is crucial to providing these children with the help and support they need. Although these conditions are relatively common, there is currently little contribution from neuro-disability specialists and specialists for parents and schools.
Geniuslane provides early intervention for neurological problems like Autism Spectrum Disorder, Cerebral Palsy, Global Developmental Delay, Dyslexia, Intellectual Disability, and Developmental coordination. Geniuslane offers a lot towards the betterment of children of which some are listed below.
- They use IBAC- DRV© (Intervention Based On assessment Cycle)
- Their Programs deliver Developmental and Applied behavior analysis digitally to the child.
- They deliver Digital Cognitive behavior therapy solutions to parents addressing Denial, panic, and blame which often affect them with the poor prognosis
The Brain Behind The Idea:
The great mind behind Geniuslane is Dr. Rahul Bharat. He is an accomplished paediatric neurologist. He completed his medical degree from the prestigious University of Calcutta, India. He completed higher specialty training in paediatrics, Paediatrics neology, and epilepsy in the UK. He is a fellow member royal college of paediatrics and child health and he has also been awarded the prestigious NHS clinical entrepreneur award. Although he had a successful career in the UK itself, he chose to return to India and provide support to the children of our country.
How does it work?
A digital and simplified Proof-based solution, which works with an intelligent algorithm, empowers parents, and schools, and adapts to the child’s development and needs.
Early years solutions has developed a web solution for preschool or school children. For children with autism, the school counsellor will be trained to mark the child’s early year foundation before skills (EYFS), child behavior, and parental depression questions. Provides a profile of the child’s basic skills and behavior for parents. The algorithm identifies important areas and wise goals for parents. Early Years Solutions has also developed an app that parents can use to view home programs tailored to their child’s profile.
Repeated testing within two months may provide a new profile or, in the absence of progress, may identify children and families in need of additional assistance. Their solution empowers parents and schools to work in one place to provide early intervention.
Information to parents is submitted as a video to the parentsthrough a health app to be viewed by them ‘anytime’. Thanks to the profile creation, the information is developed to be ‘fit,’ ‘easy to use,’ and ‘effective in solving everyday parenting problems. It also offers games related to EYFS schools for children to improve their interaction and EYFS child skills. This can be used ‘everywhere’ by parents and schools.
Let us try to understand their procedure in depth with help of an example. The graph visible to you below this paragraph is the initial report of a 3 and half-year-old girl. One of their paediatrician in the first phase diagnosed the child’s autism. After which, the paediatrician provided detailed information in a video format to the parents using the Geniuslane app. The parents were in disbelief and so they rejected the diagnosis. As a few months passed, the parents realized that the difficulties of the child were not improving and so they brought back their child to the center and pledged to go on with the process.
Graph 1 shown above is the 1stassessment report of the child which depicts that the child’s- Early year foundation skills work like that of a 1-year-old child. The report also confirmed that the child had significant irritable, restrictive Repetitive behavior. Geniuslane’s unique algorithm helped in identifying the target areas and also provided goals for early intervention.
Graph 2 above shows the report of the same child after one year as she began completing all the tasks designed specifically for her by Geniuslane. The graph shows how the Early year’s foundation skills and behavior profile improved and came close to that of a 3-year-old child. The child’s irritable and restrictive Repetitive behavior also saw significant improvement.
The parents were so delighted with the result that they showed full faith in the process and continued the intervention for another 6 months. Graph 3 shows that the child after this period of intervention reached the foundation skill of a 4-year-old child. Alongside her, irritable and restrictive Repetitive behavior reduced remarkably.
Now the child has been part of the mainstream school without any extra support. She continues to learn in line with the expectation of her age. This was only possible as her behaviour and early year foundation skills along with the parental stress were improved and developed. This is one of the many examples that have received such remarkable results by adopting the process and methodologies generated by Geniuslane.
Neuro-disability is a real challenge for society to evolve from the obsession with success and accept children with their strengths and difficulties. In the above example, the child’s report indicated that her maths skills are higher than a typical child whichGeniuslane was able to identify and thus, helped to empower the child in such a way that they become capable to take advantage and use their natural gifts.
The journey so far…
The establishment of intervention centers was just the beginning of this noble journey. Since then, Dr. Rahul Bharat along with the team of Geniuslane has been able to successfully create an algorithm-based software that embarks on itself several path-breaking features. To achieve this, the team had to face some serious challenges along the way. Some of the key challenges are listed below.
- Specialist School:
They found that specialty schools were not supported by trained Paediatricians. Diagnosis and further profiling were not used as a basis for planning personalized training. They did not find plans to involve parents as partners in improving outcomes for children.
- Increased Parental Stress and Poor Outcome:
Lack of support from Schools increased stress on the parents. This intensified poor outcomes in children.
- Lack of Specialist Support for Children and Families:
Schools could not meet the needs of these children. Each school had counselors, but they were not supported by trained Paediatricians. There were no early intervention centers or plans to integrate them into mainstream schools. These children were excluded.
- Lack of Proper Assessment:
Lack of proper assessment and diagnosis for these children. The Paediatricians were not trained and there was a lack of specialists like Paediatric neurologists. The Paediatrician was also very busy with Acute work.
- Poor Compliance among Parents:
They received feedback that parents had moved from one center to another and completed the therapy years later, finding that their children were becoming anxious and obsessive. Long-term results were not recorded by them, and short-term results were counted as results.
- Therapy Centres:
They found that the parents trusted the therapy center. Most therapy centers have not tailored interventions based on diagnosis and long-term outcomes. For example, in Autism the approach was to improve speech. But they turned to Occupational sensory therapy to reduce hyperactivity. When this behavior of the child is disturbed, a Behavioural Psychologist is called.
Along with this, Dr. Rahul Bharat also made continuous efforts to reach out to as many paediatricians as possible in UP, to support the paediatricians deliver accurate prognoses to their patients. In line with this, he conducted a Conference in King George Medical College, Lucknow in the year 2017, which was attended by nearly 120 paediatricians from all across UP.
Immersive course for everyone
For schools/kindergartens that wish to introduce Early Intervention for children with developmental delays, this software and application provide a platform to record the child’s developmental progress. This generates a profile report. This provides home-based intervention program videos for parents. Parents and schools find a single platform to communicate and understand the child’s problems, and the school and parents will be able to plan activities to work with, and effectively manage the child’s behavior.
After a thorough research by Dr. Rahul Bharat and his team, designed a course that will support doctors as well as parents to understand and apply the correct methodologies to help their kids improve rather than making things worse by using untested ways and means. Below listed are some of the topics that the course focuses on and how they will be beneficial to its users.
- Diagnostic criteria: How the specialist performs the diagnosis and what the guidelines are. The words used by the doctor and what each word means. This information helps in dealing with parental denial diagnoses. This also helps clarify for parents who suspect additional, alternative, or not available diagnoses for children.
- Problems in the diagnosis: How will the child behave according to the diagnosis? This may be related to the development of their nervous system, the normal behavior of others, to other disorders such as epilepsy. This information helps to provide clarity to parents so they can make sure they get the right diagnosis. They have also included information on the long-term symptoms of each diagnosis.
- Early intervention: This helps parents to understand what the child is going through. It highlights the child’s difficulty with daily activities or comprehension. Clear information is provided to help parents make a difference in their child’s life, as well as to make daily tasks and understandings much easier. Despite the same diagnosis, all children are different, and their difficulties will be different. All parents should evaluate the age of their child and be aware of any behavioral patterns. Parents who do this will have a better understanding of a particular issue of their child and will be able to get better results with our early intervention program.
- Other problems: Other affected areas such as sleep, behavior, diet, epilepsy, and movement disorders. Problems in these areas are common and greatly affect the quality of life of the child. These places are usually not seen in advance. When identified, there is often no clear plan or method of dealing with these problems. Addressing these issues early and appropriate is of great benefit to the child. Having this information empowers parents to provide care and support for their children’s needs.
In this result-driven world, Geniuslane has left no stones unturned. They have successfully helped more than 3000 children in UP and are planning to reach every child who needs support. They achieved more popularity when their research was published in the British Medical Journal. Their efforts were not in vain as 70% of children with Autism, improved in their Early year’s foundation skills after 12 months in the program. They have not just helped the children but parents as well. Their programs reduced the Parental stress index by 80%.
As every day goes by, Geniuslane continues to transform the lives of countless children and their parents. We hope and pray that they continue to do so and become the most successful group of child support centers in the entire world.
Year of Founding
Dr. Rahul Bharat